Remember that you can ask for a patient advocate to accompany you to doctor appointments. Hospitals always have them ava

Of course, coming armed with data doesn’t always get a warm reception from doctors. “The risk is that if you go to a physician with a review of symptoms that’s extremely positive [meaning you have lots of symptoms in lots of categories], most physicians are going to roll their eyes and say, ‘Oh my god, I can’t deal with this,’” says Kaufman. How you present the information can, unfortunately, be important. Keep it succinct and simple: Can you capture the most important data and organize it into bullet points of one sentence each? Can you rate your symptoms on different days with a number scale as a quick snapshot of severity and how it fluctuates? And remember: You don’t have to stick with a doctor who dismisses you.

If you’re part of a marginalized group, you already know experiences with the medical system can be incredibly draining. Prepare for doctor’s appointments by planning ahead how you want to respond to anything racist, sexist, homophobic, or ableist, suggests Jemel Aguilar, 50, an associate professor of social work at Southern Connecticut State University who’s had ME for 20 years. “The easiest thing to say is ‘Thank you for your thoughts,’ and then leave and post your experience on Healthgrades,” he said. “As sick folks, there is no sense arguing with racism, because we have more important things to take care of, like our health.”

“When you can’t go big, go small, go tiny. Find beauty in the view from your bed, in the dust motes dancing in the sunshine, in the sound of a loved one’s voice on the phone. Keep your heart and your mind open when everything conspires to shut you down, including your own thoughts,” McReynolds says.

“When you can’t go big, go small, go tiny. Find beauty in the view from your bed, in the dust motes dancing in the sunshine, in the sound of a loved one’s voice on the phone. Keep your heart and your mind open when everything conspires to shut you down, including your own thoughts,” McReynolds says.

The race happens on a 300-meter track. While carrying your special delivery, you’ll be climbing over fences, running down hills, slogging through shallow mud ponds. And fellas, I recommend you don’t dunk her head if you can.

And don’t neglect your mental health. Depression and anxiety do not cause long Covid-19, but it is a depressing and anxiety-producing situation. Consider finding a mental health practitioner to work with who understands chronic illness and medical trauma; many such providers are now offering telehealth appointments.

“Refuse to settle for an existence as opposed to a life. You are more than your illness. Don’t wait to recover to resume living,” says Maggie McReynolds, 60, a book-writing coach in Colorado who had already been sick with ME for 30 years when she became a Covid-19 long-hauler seven months ago.

Finland’s already hosts the world championships for boot throwing, mobile phone throwing, and, the infamous air guitar championships (which my partner professed a bizarre love for on our first date).

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, I bought a car during this pandemic. I used to take Uber all the time. I don’t take Uber anymore. Do you think the idea of the end of car ownership is still something that is actually possible? And how long will this pandemic set us back?

We’re offering a free course to all of our new subscribers as a thank you for your continued support. When you sign up using this link, we’ll send you tips on how to boost mental clarity and focus every two days.

What’s the point of being so serious, so timid, so stuck in a state of pragmatism that’s really nothing more than a failure to understand that you’re a speck of cosmic dust and that it’s insane you’re even here in the first place.

I long ago vowed not to become a generic country-club white dude who plays golf and watches football 24–7. If that requires me carrying the woman I love like a beautiful, leaky sandbag, so be it.

In general, give yourself permission to rest and heal. There are no “shoulds” right now; you’re allowed to mourn. This is not your fault, reminds Wilhelmina Jenkins, 70, a longtime activist who lives in Atlanta and has been sick with ME since 1983.

Remember, too, that you don’t have to figure this all out alone. Join an online Covid-19 support group. Covid-19 is disproportionately affecting communities of color — if you’re in that cohort, seek out BIPOC-specific support groups, Studemire suggests.

Now may not be the time to try to read all the classics or binge-watch the latest highbrow drama. Try to enjoy things you’re already familiar with so you don’t expend mental effort following new plotlines. Reread beloved books and rewatch movies you could quote by heart. Light and easy is good: “I don’t even really like romance novels that much, but my brain can handle that,” Anderson says. “I’m reading lots of mentally lightweight stuff.” If reading text is too difficult, try listening to familiar audiobooks, a podcast, or classical music instead. And remember that if you want to spend your downtime simply resting, that’s okay — it’s what your body and brain need right now.